Special Olympics reminder

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Just to remind everyone, the Special Olympics in Los Angeles are coming up soon, going from July 25 – August 2. There also being broadcasted on ESPN this year. For more information, head on over to their website.

Sincerely-

  

Autism Librarian

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Partnership for Hope Waiver for St. Louis County

To quote Bill McClellan from my local newspaper the St. Louis Post-Dispatch “Partnership for Hope is a unique collaboration between county developmental disability boards, the Missouri Department of Mental Health and federal Medicaid services. The program aims to prevent individuals with developmental disability situations from deteriorating to the point of crisis by assisting with their transportation, housing, technology, personal assistance, and physical and behavioral health needs“.

On July 8th, from 9am – noon, the Productive Living Board will hold a public hearing at the St. Louis County Library’s headquarters to let the public comment on the Partnership for Hope Waiver Amendment. I plan to be there, along with many other parents of those with disabilities in St. Louis. If you would like more information, click here.

Sincerely-

  

Autism Librarian

Angies list for kids and adults with special abilities

Okay, this isn’t going to be my typical post but here goes. I came across this article tonight over at Disability Scoops entitled “Angie’s List Eyed For Vetting Caregivers”by Rita Price at the Columbus Dispatch/TNS and it got me to wondering, why isn’t there an Angies list for kids and adults with special abilities?

I tried to get on Angies list to check on home-care providers but I forgot you have to join. Well, as a single parent as well, I don’t have those resources but what if we could create a website for parents such as myself? With a child who is now 16 years old, I’ve begun the process of looking around for possible places for him to live (if not with me or his mom) but I know lots of these kids and adults will need much more than that.

Like Ms. Ryan says in the article “There are literally hundreds and hundreds of providers. It’s hard to know who will work best with their family member” and like she also pointed out ” Just because a home-care agency or an independent care provider is certified to bill Medicaid or Medicare doesn’t mean the service will be high quality”.

Maybe there is already something like this. However, if my experience with the state of Missouri has told me anything so far, it’s probably that there is no list. If anyone has any ideas, I would be happy to listen to them. I may not have money but I do have the motivation (and a web design certificate that’s gathering dust). Maybe we could start a GoFundMe page and see what happens.

Sincerely-

  

Autism Librarian

 

 

Dogs

I can hear my daughters voice right now, see dad, pit bulls are great dogs, they just have a bad reputation. She’s been trying and trying to get me to get a dog. Right now I have a cat but what makes it difficult is that I’m gone nearly 12 hours a day and as a single father (with my kids not always here) it would be impossible to have a dog in my mind.

Anyway, this is a great story about a dog and yes it’s a pit bull, that helps a young man really start to open up. The article is entitled “Rescued pit bull helps autistic teen open his heart” by Jenn Savedge over at the Mother Nature Network. Meanwhile, my daughter will continue to look for answers.

Sincerely-

  

Autism Librarian

Special Olympics

When I came across this article today at work, I knew I had to write about it. This is what the Special Olympics is all about and with them just around the corner, this young man’s spirit is a perfect example.

The article is entitled “For one family, Special Olympics growth creates new opportunities” by

  

The 2015 Great Race

Earlier this summer I decided to take my two boys to what’s billed as the 2015 Great Race. It’s a race that tracks along the original Route 66 road and goes from Kirkwood, Missouri to Santa Monica, California.

Well, just the other night as I was talking to them about it, I discovered that it’s also raising money for autism. So if anyone is interested in tracking the race or lives in one of the towns in which their stopping, they have a website. Also, here’s a list of the cities they’re planning to stop in along the way.;

START: Kirkwood, Mo. (St. Louis area)
LUNCH: Rolla, Mo.
OVERNIGHT: Springfield, Mo.

LUNCH: Claremore, Okla.
OVERNIGHT: Oklahoma City, Okla.

LUNCH: Elk City, Okla.
OVERNIGHT: Amarillo, Texas

LUNCH: Tucumcari, N.M.
OVERNIGHT: Santa Fe, N.M.

LUNCH: Albuquerque, N.M.
OVERNIGHT: Gallup, N.M.

LUNCH: Winslow, Ariz.
OVERNIGHT: Flagstaff, Ariz.

LUNCH: Kingman, Ariz.
OVERNIGHT: Lake Havasu City, Ariz.

LUNCH: Twentynine Palms, Calif.
OVERNIGHT:  San Bernardino, Calif.

FINISH: Santa Monica, Calif.

And just as an FYI, The city of Kirkwood is also having the first annual Kirkwood Route 66 Fesitval.

Sincerely-

  

Autism Librarian

NASCAR & autism

While I have no article to share tonight, I just thought I’d share a story about my son and I and NASCAR. Like many kids with autism, race cars seem to be a common interest and so for the second year in a row, my son and I went to the Camping World Truck Series Drivin’ For Linemen 200 over at Gateway Motorsports Park.

Unfortunately this year it rain and so we couldn’t stay for most of the rain as my mom was watching his siblings. However, I was very proud of him when he said to me several times, it’s okay if we leave dad. When he was younger, he never would have said that.

I’m thinking about rewarding him with a Xfinity race up in Iowa when we’re on vacation. It turns out my cousin and her husband are big race fans. Stay tune.

Sincerely-

  

Autism Librarian

Theatre

As a single dad and the father of three kids including one with autism, theater isn’t high on my list of things to do. I have however seen a couple plays recently that looked good. I believe one is called War Horse, which of course my daughter wants to see and the other one apparently is one that one a few Tony awards last weekend called The Curious Incident of the Dog in the Night-Time.

The reason I know this is because of the article entitled “Play Centered Around Teen With Autism Wins At Tonys” By

Sincerely-

  

Autism Librarian