So tonight is one of those nights where I don’t have an article to post, simple a thought to blog about. Tonight, a local group called St. Louis Arc hosted a workshop entitled Financial Literacy and while it was designed for both parents and their kids about finances, it was also very much a work in progress.
They talked a little about how this was a new workshop and so we were the guinea pigs as it were. Afterwards we were to give them input as to how it worked. To be honest with you, it wasn’t quite what I expected, of course my son wasn’t there either, so in that sense it was fine.
Afterwards I filled out my questionnaire as to how it went, both good and bad. In addition, I also got a chance to give my input to the person who runs St. Louis Arc and so that was good. I see her once a month at a meet-up my son and I go to where he gets the chance to hang out with others.
So even though it may not have been all that I expected, it was still very helpful. In fact, as I’ve recently begun to re-focus on my own financial stuff, it’s helped motivate me to work on my son’s stuff as well. Sometimes we all just need a gentle nudge to keep going. Tonight was mine.
This article tonight really hit home for me in the sense that I remember being in that same place and I agree, it’s what many parents of a child with autism don’t want to say out loud, though not just at the age of 13.
As the father of a young man with autism who is now almost 19, I too had doubts if my son would graduate high school. The amazing parts of this journey however, have been when he surprises me, like when he graduated last year and walked with all of his classmates. Where he goes from here is still a mystery but, those amazing parts are what keep me going.
So this week was a tough week. It started last Thursday and ended yesterday as my daughter and I said good-bye to our beloved Oreo. Now while for my daughter and younger son, tears flowed but for my oldest they really didn’t.
That said however, I know Oreo meant a lot to him as well. From all the times my son would jump on my bed and just lay his head on Oreo to the time at school when I learned his password for his computer was Oreoismycat01.
Tomorrow he will be over here at the house for the first time since Oreo passed away, so we will see how he does. At the place where he works today, his bosses let me know that Evan told them about Oreo. I did however also let them know the night before, just so they would be aware of it if he did mention it.
So, here’s to you Oreo. You really made an impression. I’m glad you were and always will be, one of the family.
So once a month I go with my son goes to a local meetup for kids and adults with autism or other special abilities, to hang out, eat and just talk. This one however, was the first one where I really sat back and just watch, while talking with a mom who had come for the first time, to see if it was something her son might enjoy.
This time, I was able to take what I’ve learned on our journey and help her. Her son, I believe in his thirties, is much older than my son but for her, the journey is probably a little behind ours.
See, her son was diagnosed back before many of the resources that I take for granted existed and as such he doesn’t really have a diagnosis even. She is also a single mom, just like I’m a single day. So I shared what I’ve learned and names and places of organizatios and people we’ve met along the way.
The group who puts on this meetup, along with many others is called St. Louis Arc, a great group that I highly recommend. This time, I was really able to relax and watch my son enjoy himself while also helping someone else navigate their journey. It’s always nice to both give and get something out of these meetups.
What a great name for a book and it’s also a great follow up to my previous post entitled Dating. Tonight’s post is about the book Kissability, written by Katherine, a woman who has cerebral palsy and is confined to a wheel chair.
I must say this is a topic I’ve not approached really with my son, perhaps one day but maybe I need to start reading up on it now and this article is probably a good place to start. The article is entitled “Ten Steps to Help a Teen With Autism Navigate Dating” over at Autism Speaks. That said, I guess I’ll read it tonight and print it up at work tomorrow. There’s always a new adventure around the corner.
If I’ve learned nothing else in life, it’s that everyone has their own backstory and until you hear that story, you’ll never know what it is. So this story tonight is about someone telling someone else their backstory. All I can say is it’s a very powerful story.
When I read this article, the first think that came to my mind was, I hope one day my daughter feels this way. Right now she’s struggling with her relationship with her brother and as I think I said before, it’s stressful for all of us.
So right now my daughter is struggling with having a brother who is autistic and I understand. In our family, like no doubt most families with someone who is autistic, it can be quite a struggle.
Tomorrow however isn’t one of those days because tomorrow I will just have my son. The reason? He want’s to wrap his sister’s Christmas gift, the one that I got her. He’s actually already wrapped the one he got her.
In addition to that, we will hang out a bit and maybe do something, just the two of us. For I know that beneath that autism is a young man who is very sweet. In fact, last week he bought a Christmas gift for a good friend of mine. He didn’t have to buy her a gift, he just wanted to. The thing is, she lives half way around the world.
She thought so much of it, she bought him a gift. Granted, I ended up getting it and will give it to him from her. Amazing how he can be so sweet to someone he’s never even met. It reminds me of the age old question, why can’t we all just get along? Or maybe we just all need to be a little sweeter.