Siblings

So this is a topic that until recently I must admit I haven’t dealt with much, as my son’s siblings are 14 and 11 respectively. However, my daughter the other day brought the topic up and so after that conversation, I had to admit I needed to do something.

So what I did was contact someone I know over at the group St. Louis Arc to see what was available. Unfortunately they had groups or meetups only for 6-12 year olds and adults, so I guess my job here is to see if we can start something up for teenagers.

So while in this situation I have no article, I will keep you posted as what happens next. I’m still waiting to hear back from my friend I contacted but I also offered to help start a group if need be. Stay tune.

Sincerely-

 

Autism Libarian

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Special needs trusts new rule

Recently I just open up an ABLE account for my son. I had look at opening a Special Needs Trust but decided against it because of the flexibility of ABLE accounts. So I was happy to see this article entitled “Feds Clarify New Rule for Special Needs Trustsby Shaun Heasley over at Disability Scoop. To me, the more flexibility for people with special abilities, as well as their caregivers, the better.

Sincerely-

   

Autism Librarian

Girls, girls, girls

So I try to post articles about girls and autism whenever I see one but unfortunately, they’re not a lot. This one in fact comes for the Independent in the United Kingdom. The article is entitled “Girls with autism are getting a rougher deal than boys because our assessments are so male-centred: Thousand of women are not receiving the support they need because they’re better at ‘fitting in’ ” by Tiago Pinto. From what I can see or rather not see, we really need to focus more on girls and autism here in the United States.

Sincerely-

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Autism Librarian 

Back in the day

So this article about a letter from a mother to her autistic son doesn’t necessarily relate to me in regards to their relationship, it does take me back. In fact I just realized tonight I’ve been writing this blog for nearly ten years now.

At the time, my son and I were early on in our journey. So in honor of those ten years and for all mothers and fathers of sons or daughters with autism, this letter is for you. It’s entitled “A Letter to my Son with Autism” by Kristen Williams over at The Mighty. We should all write a letter to our child.

Sincerely-

  
  
Autism Librarian

Thank you!

I think in this article, we can all take a page from David’s playbook. I would also suggest that the airlines would do well to point out this story. For that matter, humanity would do well to tell his story.

The article is entitled “Autistic Man Goes into Panic at Airport, then Airline Employee Crouches Down & Whispers in His Ear” by Josh Starling over at InspireMore. As I’ve said before I’m sure, I speak for many parents of children and adults with autism or any special ability for that matter, we need lots more David’s.

Sincerely-

  

Autism Librarian

Lens for love

So tonight I’m going to talk about a website that I just came upon called Lenses for Love and the incredible work that it does. I was actually inspired enough by the story I read recently that I applied to be a photographer. I was so inspired that I did this without having a good enough camera to do the job. I am planning however, to get one over the summer. So meanwhile I will wait and see.

Sincerely-

   

Autism Librarian

Transition Families Support Group

So tomorrow afternoon I’m going to my first Transition Families Support Group meeting with a local group called St. Louis Arc. It lasts only an hour and we’re suppose to bring our  lunch but as of now, I won’t know anyone, so we will see how that goes.

There is another meeting that night entitled LAUNCH Support Group which is for A support group for families of young adults who have the potential to live and work in the community, but face barriers to success.  I’m not sure if I belong there (yet) but we’ll see. One step at a time.

Sincerely-

   

Autism Librarian

Letter from dad

I read this article at work earlier today, a letter that for any parent of a child who is autistic, I’m sure hit close to home.  It wasn’t a letter that necessarily stuck an emotional cord with me, perhaps because for me I’ve been on this path for a while now and I’ve made that same stop but, when I read the part where he talks about ‘Holland’, it took me back to  that place once again:

I’m sure that if Christopher were typical (that’s the word we use instead of “normal” in our world of ‘Holland’, for our developmentally delayed children), I would have not had this conversation with him either.

It was a well-written letter that perhaps begs of us to all do that little thing like sitting down next to someone who is by themselves or just say hi! The reality is, we’re all on our own path but for any of us to make it, we need help. As Mr. Cornelius said:

there’s no easy answer for this…at the end of the day it comes down to compassion, empathy and understanding.

I almost forgot, the article/letter is entitled “This Dad’s Heartbreaking Realization That His Son With Autism Has No Friends over at Pop Sugar and continues on at Facebook.

Sweet dreams!

  

Autism Librarian