So lately I’ve started looking for more resources on siblings of kids with autism in regards to my two younger kids and their relationship with their brother. As they’ve grown up, I’m realizing that maybe I haven’t done enough to foster their relationship and maybe I need help.
Up to this point, I’ve come across mostly information regarding younger kids and from organizations that I’m familiar with. The only one that was new to me is an organization called Siblings of Autism. I plan to touch base with them tomorrow to see all of what they have to offer.
Meanwhile, I will continue to do some more research, hopefully finding more geared towards older kids and their siblings. As I find more, I plan to create a page with links towards those resources but for siblings of all ages.
Unfortunately, since my dad passed away before my son was ever born, that won’t happen. It’s been just over twenty-four years ago that my dad passed away from a heart attack while playing golf with his friends. The next week, I gave my golf clubs away.
Fast forward twenty four years and now my son likes golf. In fact he’s taking a summer golf class which ends the week after we get back from vacation, with that last class a nine hole tournament.
Then that night he and I are going to a Cardinals baseball game celebrating the baseball movie Sandlot, a movie he loves. Just wish my dad was here.
So one website that I visit and share articles from frequently is called the The Mighty and it’s also one that I’ve been meaning for a while now to submit an article to but now that they have a new way to share with others, I might finally find time to do just that.
Anyway, for anyone who has taken this journey, one of the best ways to find support is by sharing with others who have been on that same journey. Tonight’s article, entitled “Inside the Mighty: Two New Ways to Help Each Other” by Mike Porath, talks about in great detail. So check it out. I plan too, just not tonight. It’s way past my bed time.
Up to this point, it’s been interesting with bits and pieces of funny and yet insightful stories along the way. The author herself has worked in the field of autism for 20 years, along with having two kids, a boy with Autism and a girl with Asperger’s.
Just like T.O. Daria’s family, we too have a cat. Unfortunately, our first cat, Oreo passed away recently so we’ve adopted a new cat named Caesar. I recently wrote about Oreo in the post My Son and Our Pet Cat. I guess I should introduce Caesar in the not too distant future. After all, he too is part of the family.
So tonight is one of those nights where I don’t have an article to post, simple a thought to blog about. Tonight, a local group called St. Louis Arc hosted a workshop entitled Financial Literacy and while it was designed for both parents and their kids about finances, it was also very much a work in progress.
They talked a little about how this was a new workshop and so we were the guinea pigs as it were. Afterwards we were to give them input as to how it worked. To be honest with you, it wasn’t quite what I expected, of course my son wasn’t there either, so in that sense it was fine.
Afterwards I filled out my questionnaire as to how it went, both good and bad. In addition, I also got a chance to give my input to the person who runs St. Louis Arc and so that was good. I see her once a month at a meet-up my son and I go to where he gets the chance to hang out with others.
So even though it may not have been all that I expected, it was still very helpful. In fact, as I’ve recently begun to re-focus on my own financial stuff, it’s helped motivate me to work on my son’s stuff as well. Sometimes we all just need a gentle nudge to keep going. Tonight was mine.
This article tonight really hit home for me in the sense that I remember being in that same place and I agree, it’s what many parents of a child with autism don’t want to say out loud, though not just at the age of 13.
As the father of a young man with autism who is now almost 19, I too had doubts if my son would graduate high school. The amazing parts of this journey however, have been when he surprises me, like when he graduated last year and walked with all of his classmates. Where he goes from here is still a mystery but, those amazing parts are what keep me going.
So this week was a tough week. It started last Thursday and ended yesterday as my daughter and I said good-bye to our beloved Oreo. Now while for my daughter and younger son, tears flowed but for my oldest they really didn’t.
That said however, I know Oreo meant a lot to him as well. From all the times my son would jump on my bed and just lay his head on Oreo to the time at school when I learned his password for his computer was Oreoismycat01.
Tomorrow he will be over here at the house for the first time since Oreo passed away, so we will see how he does. At the place where he works today, his bosses let me know that Evan told them about Oreo. I did however also let them know the night before, just so they would be aware of it if he did mention it.
So, here’s to you Oreo. You really made an impression. I’m glad you were and always will be, one of the family.
So once a month I go with my son goes to a local meetup for kids and adults with autism or other special abilities, to hang out, eat and just talk. This one however, was the first one where I really sat back and just watch, while talking with a mom who had come for the first time, to see if it was something her son might enjoy.
This time, I was able to take what I’ve learned on our journey and help her. Her son, I believe in his thirties, is much older than my son but for her, the journey is probably a little behind ours.
See, her son was diagnosed back before many of the resources that I take for granted existed and as such he doesn’t really have a diagnosis even. She is also a single mom, just like I’m a single day. So I shared what I’ve learned and names and places of organizatios and people we’ve met along the way.
The group who puts on this meetup, along with many others is called St. Louis Arc, a great group that I highly recommend. This time, I was really able to relax and watch my son enjoy himself while also helping someone else navigate their journey. It’s always nice to both give and get something out of these meetups.
What a great name for a book and it’s also a great follow up to my previous post entitled Dating. Tonight’s post is about the book Kissability, written by Katherine, a woman who has cerebral palsy and is confined to a wheel chair.