Just one of those days

Today I don’t have a particular article to post just my thoughts. So my son graduated from high school this year and while he has a work/study program lined up for the next three years if necessary with the St. Louis Special School District, I have a lot to do.

I need to deposit some money into his new ABLE account, I need to get him over to a friend’s automobile shop to work on seeing if he’s interested in becoming a mechanic and at the same time, check out the local community colleges technician’s program. Then there’s the whole Supported Decision Making thing to look at and the list goes on….

With out vacation coming up, I need to try and get some of this done before we leave because once we get back, school for his siblings as well as his work/study program will be close to beginning. So much to do and so little time.

Sincerely-

   

Autism Librarian

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Reminiscing

So the article I’m posting today is about a place I’m familiar with. It’s entitled “When the ‘Basics’ Are Difficult for My Son with Autism” by Shawna Wingert over at The Mighty. While my son doesn’t know what a CPU is, his knowledge of cars is incredible.

In fact, a few weeks ago I took him to a friends mechanic shop, with the idea that if he knows a lot about cars from the outside, maybe learning about the inside of cars is the next logical step.

Anyway, like the young man in the article, my son couldn’t do the basics at that age but to look at him today, it’s amazing to see how far he’s come. As Ms. Wingert said in her article, my son will figure it out. Until then, he has me. I’m his dad.

Sincerely-

   

Autism Librarian

My sons future

Tonight I don’t really have an article but I just wanted to given an update on what I’ve been doing for my son. So last week I went to a Family Transition Support Group meeting over at St. Louis ARC and asked them about the ability of individuals to open up their own Special Needs Trust and they said she wasn’t aware of that.

Then tonight I first e-mailed my state treasurer to see what the status is regarding ABLE accounts here in Missouri and then e-mailed the Special School District here in St.Louis County to set up an appointment to talk some more about the options my son will have after he graduates this spring.

My next step is to look over the workshops for this semester and take or re-take any I feel I need too. For some strange reason when I went to that meeting last week, I felt sort of like I have a plan.

On a side note though, I recently wrote a post on the idea of building a tiny house for my son and I learned at the aforementioned meeting that Autism Speaks recently did some research on them. I printed something up the other day and I still need to read about that. There’s always something!

Sincerely-

   

Autism Librarian

Looking in the mirror

So the kids and I were watching what are known locally as the Musial Awards. They recognize remarkable individuals and amazing stories of character, kindness, selflessness and integrity in sports.

Anyway, they had one story on college football player Travis Rudolph and how sitting down to have lunch with an autistic young man named Bo Paske at his school became a story that went viral.

During the story, his mom talked about when her son was diagnosed with autism and how she was told by the doctor he won’t ever hold a job, play team sports or even live on his own. What many parents of kids with special abilities hear.

Anyway, as she related that fact to the reporter of the story, my son kept looking at me. Sort of like, do you worry about that with me? I didn’t really pursue the discussion. I guess I just wanted to see if it would sink in with him and leave it for a conversation on another day. One that will come soon enough.

Sincerely-

  

Autism Librarian

Right up my son’s alley

While these opportunities might be something my son would be interested in, I know it’s a stretch from where he’s at now. About as far as I’ve gotten is identifying some garages we might be able to go to and see if this is something he would be interested in.

This article over at Disability Scoop entitled “Ford Expands Autism Hiring Initiative” by Michelle Diament however, gives me hope for the future. Keeping hope alive is a good thing.

Sincerely-

  

Autism Librarian

Today was the day

It didn’t start out to be this kind of day but it ended up that way. I intended to start cleaning my room but the first pile of papers I had in my room to go through turned out to be mostly about my oldest son and his future.

So today was the day I started really planning out his future. I created a sort of time line of what resources I need to get in touch with. I also created a to do list for myself of what I need to do to help create his future. Finally I started making a list of questions to ask a lawyer regarding his future finances.

Right now I’m taking a break to blog a little and then call my kids to wish them good night. Then, it’s back to more research on the next step to take. Wouldn’t have it any other way.

Sincerely-

       

Autism Librarian

 

The future

This is an article about a place that while we’re not there, I know is coming as I continue to get ready for. Working on things like guardianship and estate planning have me trying to get everything in place for when he turns eighteen.

The article is entitled “Struggling to Find My Role After Placing My Son With Autism in Residential Care” by Kristen Scott over at The Mighty. I know the future is coming and I’m hoping I”ll be ready.

Sincerely-

  

Autism Librarian

ABLE Act & life insurance

This Thursday I will find out all that I ever wanted to know on the ABLE Act in the state of Missouri. This week, I started asking questions about what life insurance would work best for me and my family.

In turn, I had the good fortune yesterday to find out from a co-worker that where I work (the federal government) will be offering life insurance to families for the first time since I started working there in 2005.

Along with that, I’ve been e-mailing the author of F.A.M.I.L.Y. Autism Guide: Your Financial Blueprint for Autism, Mr. Greg Zibricky, to discuss my options for life insurance. Both just  pieces to the puzzle. All in all, it’s been a good week.

Sincerely-

  

Autism Librarian

Planning for the future

Tonight, I finally got around to working again on planning for my son’s future. It’s taken a while but I finally feel like I have a plan and some directions as to where to go. Tomorrow I plan to start making calls.

I also have begun writing down questions to ask various organizations and people to help me flush out more of those plans and the details they include. It sort of feels like I finally turned the light on in a dark room and now I can begin to see what I have.

You know, as I uploaded this post, I realized that last weekend we went to where we took that picture above (along the Meramec River) and I because of our floods late last year, that river looks so much different. Helps me keeps things in perspective.

Good Night!

  

Autism Librarian