So once a month I go with my son goes to a local meetup for kids and adults with autism or other special abilities, to hang out, eat and just talk. This one however, was the first one where I really sat back and just watch, while talking with a mom who had come for the first time, to see if it was something her son might enjoy.
This time, I was able to take what I’ve learned on our journey and help her. Her son, I believe in his thirties, is much older than my son but for her, the journey is probably a little behind ours.
See, her son was diagnosed back before many of the resources that I take for granted existed and as such he doesn’t really have a diagnosis even. She is also a single mom, just like I’m a single day. So I shared what I’ve learned and names and places of organizatios and people we’ve met along the way.
The group who puts on this meetup, along with many others is called St. Louis Arc, a great group that I highly recommend. This time, I was really able to relax and watch my son enjoy himself while also helping someone else navigate their journey. It’s always nice to both give and get something out of these meetups.
I guess that title is just the law librarian coming out in me. It’s really not one versus the other but rather making them both equal. I’ve been thinking about when to create a Special Needs Trust because it’s something that my son wasn’t going to able to do (until now) except with an ABLE account.
It’s funny how running into someone that you haven’t seen for a while and having a five minute conversation can lead somewhere you weren’t expecting to go. Such is the case when a friend that I ran into at the grocery store the other day, and I talked about guardianship.
When he told me that our legislature was looking into re-writing the Missouri Statutes regarding the rules and regulations on guardianship, I was excited. Being a librarian of course, I set out to research what was happening but unfortunately there wasn’t much.
I did however find a website with some information on whose taking on this project and what the status is. The group is MO-WINGS or Missouri’s Working Interdisciplinary Network of Guardianship Stakeholders and here’s the website. Now comes the hard part, finding out what comes next and how I can get involved.