My sons future

Tonight I don’t really have an article but I just wanted to given an update on what I’ve been doing for my son. So last week I went to a Family Transition Support Group meeting over at St. Louis ARC and asked them about the ability of individuals to open up their own Special Needs Trust and they said she wasn’t aware of that.

Then tonight I first e-mailed my state treasurer to see what the status is regarding ABLE accounts here in Missouri and then e-mailed the Special School District here in St.Louis County to set up an appointment to talk some more about the options my son will have after he graduates this spring.

My next step is to look over the workshops for this semester and take or re-take any I feel I need too. For some strange reason when I went to that meeting last week, I felt sort of like I have a plan.

On a side note though, I recently wrote a post on the idea of building a tiny house for my son and I learned at the aforementioned meeting that Autism Speaks recently did some research on them. I printed something up the other day and I still need to read about that. There’s always something!

Sincerely-

   

Autism Librarian

Today was the day

It didn’t start out to be this kind of day but it ended up that way. I intended to start cleaning my room but the first pile of papers I had in my room to go through turned out to be mostly about my oldest son and his future.

So today was the day I started really planning out his future. I created a sort of time line of what resources I need to get in touch with. I also created a to do list for myself of what I need to do to help create his future. Finally I started making a list of questions to ask a lawyer regarding his future finances.

Right now I’m taking a break to blog a little and then call my kids to wish them good night. Then, it’s back to more research on the next step to take. Wouldn’t have it any other way.

Sincerely-

       

Autism Librarian

 

Transition Families Support Group

So tomorrow afternoon I’m going to my first Transition Families Support Group meeting with a local group called St. Louis Arc. It lasts only an hour and we’re suppose to bring our  lunch but as of now, I won’t know anyone, so we will see how that goes.

There is another meeting that night entitled LAUNCH Support Group which is for A support group for families of young adults who have the potential to live and work in the community, but face barriers to success.  I’m not sure if I belong there (yet) but we’ll see. One step at a time.

Sincerely-

   

Autism Librarian

Tonight

Tonight I sit here without an article yet, still a lot to read. I was signed up for a workshop on Special Needs Trust tonight but, decided to skip it. I’ve been to a couple already, so I think now I just need to start to put one together.

I also found the sheet I was looking for earlier on comparing ABLE accounts and Special Needs Trust. That’s what I need to read next and then just make a decision. If not, there’s another workshop on Special Needs Trusts this Thursday.

Sincerely-

   

Autism Librarian

Day trip

So today my oldest son and I took a trip to Jefferson City, Missouri for the MPACT Transition Summit. While we had a few difficulties like the directions we had were wrong and we got there late (fortunately, they were delayed in getting started, so we didn’t miss anything), I felt like my son and I got the chance to have a good conversation  both ways on what he wants to do after school and what maybe I can do to help.

While I haven’t looked at it yet, we were given a flash drive with information from all the breakout sessions they had. That’s good because they had several at each time, so it should give us some more food for thought as to his future. That said, I need to get some sleep. We were gone nearly twelve hours, so I need my rest to tackle that flash drive tomorrow.

Sincerely-

   

Autism Librarian

ABLE update for Missouri

A while back, just before we went on vacation, I e-mailed my state Senator to find out the latest on ABLE accounts in Missouri. According to his aid, it looks like they’ll be up and running in a nine-state consortium starting this fall. They also sent me a link to the Missouri Treasurers page with more information.

I guess my next step is to come up with a list of questions on my options and then talk to a financial advisor regarding what to do for my son. Among those questions will also be one about life insurance as my place of employment is allowing me to update and/or increase my current plan for now and even after retirement. So much to do.

Sincerely-

  

Autism Librarian

IEP’s

So today we have my son’s second to last IEP at his school. I must say that by going to several workshops recently including the one entitled Beyond Guardianship: Supported Decision-Making by Individuals with Intellectual Disabilities by Jonathan Martinis (and put on by the Missouri chapter of the AAIDD) was really helpful.

I felt prepared in what to expect for his senior year and transition from school next year. At the same time, I still have a lot to do. Maybe that’s why I’ve been feeling a little down tonight.

Carry on!

  

Autism Librarian

Why didn’t I think of this?

Okay, I think my son (who is also named Evan) is too old for this and unfortunately, we’re still looking for an answer to the same situation (though we’re trying one now, using replacement words, which is having mild success), I loved the story.

The article is entitled “How a Brother Solved an Autism Problem” by Jennifer Lovy over at the Huffington Post. I have to say, I wish I would have tried this, then maybe we wouldn’t have our own list of seven dirty words. Thank you George Carlin!

Sincerely-

  

Autism Librarian

Special Needs Trust

So when I went to this workshop on special needs trusts tonight, put on by St. Louis Arc , I was expecting to learn about trusts. I truly say however, that I definitely got more than I bargained for.

I walked out feeling like I’m starting to make sense of it all, special needs trusts, guardianship and more. As one of the presenters later said, getting to where you want to get to is sort of a cylinder process. It’s like your on the outside looking in but as you go round and round, continuing to learn more, you start to get closer and closer to the center of what you need to know.

I’m definitely getting closer to the center. In fact, I think the financial advisor who spoke tonight is someone I want to talk to some more. He not only has a son with special abilities, he has a brother with special abilities. Seems to me like someone who gets it. All I can say is thank you!

Sincerely-

  

Autism Librarian