Community of adults

While I will admit, I’ve come across many articles over the years that have been helpful, I’ve also found some that reinforce my thinking in terms of what I’m doing for my son and this is one of those articles.

The article is entitled “Autistic Adults Give Advice to Parents Raising Kids on the Autism Spectrum” by Ellen Stumbo over at The Mighty. I will also admit however, that how I got to this point was really by happenstance.

It turns out that my son has found his community of adults simply by me taking him to a meet-up for those with autism, put on by a local group. Who knew I was doing the right thing!? I learned a long time ago, go with my gut. Wish I’d figured that a little earlier but maybe that’s  just one of those gifts I’ve gotten from my son.

Thanks!

   

Autism Librarian

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Disability separation and inequality

So about a week ago, my son, his mom and I met to discuss my son’s ISP. During that meeting one of the topics that was brought up was what Evan would like to do in the future regarding work and one of the things I brought up was not having him work in a sheltered workshop.

So consequently, today while I was at work, I came across this article entitled “Separation and Inequality persist among Minnesotans with Disabilities, Study Says” in the Star-Tribune newspaper by Chris Serres. To say I was a bit disappointed would be stating in mildly. Next week in fact, I’m taking my son to a local community college to check out their automotive program. Stay tuned!

Sincerely-

   

Autism Librarian

 

Autism & the NHL

So with my family being big hockey fans (in fact, my nephew currently plays for the NCAA Champion University of Denver Pioneers), this article seemed appropriate. It’s entitled “Even Helps Hockey Fans with Autism Prepare for Wild Game” over at CBS Minnesota. My youngest son was even watching the NHL Detroit Red Wings and Chicago Blackhawks play this afternoon. It really is a family affair here.

Sincerely-

   

Autism Librarian

 

Backstory

If I’ve learned nothing else in life, it’s that everyone has their own backstory and until you hear that story, you’ll never know what it is.  So this story tonight is about someone telling someone else their backstory.  All I can say is it’s a very powerful story.

The article is entitled  “To the Person Who Left Me Awestruck After I told You About My Son’s Autism” by Caitlin Johnson over at The Mighty. Like I said before, we all have one and while no two are alike, they are really all just as powerful. Hmmm….sounds just like autism.

Sincerely-

   

Autism Librarian

To my daughter

When I read this article, the first think that came to my mind was, I hope one day my daughter feels this way. Right now she’s struggling with her relationship with her brother and as I think I said before, it’s stressful for all of us.

Anyway, the article is entitled “To the Man Who Said My Brother’s Autism Would Wreck My Family” by Freya O’Horo over at The Mighty. Sometimes life is just plain hard, all we can do is take it one day at a time.

Sincerely-

   

Autism Librarian

Sweetness

So right now my daughter is struggling with having a brother who is autistic and I understand. In our family, like no doubt most families with someone who is autistic, it can be quite a struggle.

Tomorrow however isn’t one of those days because tomorrow I will just have my son. The reason? He want’s to wrap his sister’s Christmas gift, the one that I got her. He’s actually already wrapped the one he got her.

In addition to that, we will hang out a bit and maybe do something, just the two of us. For I know that beneath that autism is a young man who is very sweet. In fact, last week he bought a Christmas gift for a good friend of mine. He didn’t have to buy her a gift, he just wanted to. The thing is, she lives half way around the world.

She thought so much of it, she bought him a gift. Granted, I ended up getting it and will give it to him from her. Amazing how he can be so sweet to someone he’s never even met. It reminds me of the age old question, why can’t we all just get along? Or maybe we just all need to be a little sweeter.

Sincerely-

   

Autism Librarian

 

ID cards

When I read this article by Kerry Magro I must admit I wasn’t thrilled by the idea but I think it’s starting to grow me. In the sense that it’s the first step in a process that needs to happen. It’s not going to work for everyone with autism but it definitely helps with the awareness.

The article is entitled “These ID Cards are Helping Police Communicate with People with Autism” over at Kerry Magro’s website. Kerry is someone who cares deeply about autism as he himself was non-verbal until the age of nearly three and diagnosed with autism at the age of four. Nice job Kerry.

Sincerely-

  

Autism Librarian

Proud dad

So today was a really great day. I went to parent-teacher conferences where I heard lots of nice things about all my kids. See, this was for my youngest one but I actually got the chance to remember all of my kids as they’ve gone to middle school. We told lot’s of stories and I heard lots of great things while the teachers and staff asked how my daughter and oldest son are.

On top of that, I got a call later in the day about my oldest son from his teacher at the Vocational Skills Program or VSP for short and again I got nothing but rave reviews about how great he’s doing.  Which only added to my pride as just the other day I also got a glowing report on my son from the program head.

So all in all it was a great day. When you look back, it’s these days you cherish most. Just like with autism, when you know one of my kids, you know one of my kids.  I should also add, all of my kids wouldn’t be where they are today if it wasn’t for some amazing teachers and school administrators. To them, I say thank you.

Sincerely-

   

Autism Librarian

 

 

Sibling support

A couple of weeks ago I talked about my son’s two siblings and how I really haven’t done much to get them the support they need. Well, after posting Siblings, I’ve gotten a hold of someone over at a local group called St. Louis Arc and now they are having their first meet-up in a week or two. My next task of course is to get my kids there.

Sincerely-

   

Autism Librarian