SSI update

So out of the blue, I got a call from Social Security regarding my oldest son’s SSI application. Seems they’ve determined he does have a disability but now I have to have a phone interview regarding his ability to take care of his finances.

While I’m glad we’ve made it this far and hopefully he will get SSI, there’s nothing more depressing than trying to show someone your son is disabled and yet with my help, will be able to take care of himself financially.

The part that really got me was the lady I talked to really didn’t seem to have a lot of empathy. Seems to me if you’re going to work with people that have a disability, you should have empathy.

I’m debating whether to make that point with someone at Social Security after we (hopefully) get through this. After all, this is something no parent wants to have to do and what most will never understand.

Sincerely-

Autism Librarian

Go with the flow

Okay, so I didn’t write this morning, sometimes you just have to go with the flow. I was really tired this morning, so instead I just took what I could get done and left it at that.

Sort of like the job stuff. I realized that the three I applied for on Monday was enough and maybe I shouldn’t push it. After all, there are only so many jobs out there. I can’t apply for them if they’re not there.

This afternoon I was talking with my middle child about the Meramec river, where I use to take all my kids when they were little. We talked about how it’s changed from even just a few years. It too, sort of goes with the flow.

Here’s the picture of the Meramec river that he sent me. The river’s off in the distance. I have a lot of good memories there. I think they do too.

Sincerely-

Autism Librarian

Good week

So as I, like everyone else, struggles to make it through the days these days, I think this is already a good week. With all that went on earlier this year, having to retire from my law library job and even though I managed to land on my feet in a film library, I’ve stilled decided to keep looking around.

In fact, I’ve already applied for three jobs and it’s only Tuesday. Now granted they’re not library positions, since these days those are few and far between, a couple of them are here in town and one’s actually exactly one of the hat’s I wore at the law library.

Sincerely-

Autism Librarian

Mornings

So just as I sit here starting to write what it’s like to have my mornings to myself and a good time to write, my oldest decides to get up. Despite that, I’m thinking that this morning gig is going to work out pretty well.

Now of course, taking my youngest back to his mom’s house so early in the morning, actually helps as I have more time on Thursday’s. I also texted my middle child last night and heard back from him this morning, so really mornings are turning out to be just what I need, a little me time.

Sincerely-

Autism Librarian

School

So my two younger kids are back in school now. So I’m trying a little harder to keep in touch with what they’re doing. With what went on with my middle child last week, that’s definitely given me the opportunity to do that while my youngest one is here on Wednesday’s and most weekends.

The one thing I’ve still learning is how to spend my time when I’m not working like when to write my posts here. As of this morning, it seems like this might be the best time to do it. I guess time will tell, just like my kids.

Sincerely-

Autism Librarian

Kids

Sometimes kids surprise you when you least expect it. This time it came from my middle child. He was having a rough night over at his mom’s house, so he called me. Letting me know how much he loves me.

The words alone were priceless and yes, I let him know how much I love him too. They completely made my day, me week, my year. It was also a nice way to end the night.

Sincerely-

Autism Librarian

Baking more than just good food

I will admit that my kids and I were disappointed when the local bakery closed downtown but this story more than makes up for it. Seems the bakery is coming back but this time it won’t just be baking good food, it’s going to help those with disabilities find a job.

This according to the article entitlted “Iconic St. Louis County bakery reopening with a new concept“. Now while my son probably doesn’t want to work there, it’s nice to have another choice for those who do. At the very least, I’m sure we’ll make a visit or two.

Sincerely-

Autism Librarian

Time

If there’s one thing I miss these days, it’s time. Instead of having some time in the evenings after work to do things like write, with my new schedule by the time I have dinner, wash the dishes and take care of our guinea pigs, it’s way past my bedtime.

So I must say taking this time to write in the morning is nice. I don’t know if I will make it a habit but we’ll see. Perhaps as they say, this will be my new normal or at least a step in the direction to find it.

Now I need to get back in the habit of crossing things off my list. I have plenty to do, what I’m hoping to find is time to make the occasional phone call or write an e-mail. I know what I need to do, I just need to get it done.

Sincerely-

Autism Librarian

Tonight it was my turn

So as I work on taking some more steps for my oldest son, I have to remember to take a few for myself sometimes and tonight I did. With all that’s gone on for me over the last few months, from losing or “retiring early from” my old job only to find a new job just before the pandemic, my plan is to try and find a job that’s a better fit.

The problem is, there aren’t a lot of jobs out there, especially library jobs, so I’m trying to be patient and applying whenever I find one I like. Well, tonight I applied for another one. One step at a time, one job application at a time.

Sincerely-

Autism Librarian

Taking more steps

So in the last week two weeks, my son had his disability determination meeting for SSI and his first appointment with his new doctor, so we can work on getting his medication started again, if we so desire. I must say, I like his new doctor.

More importantly, just so he has a doctor as he hasn’t had one since his pediatrician. As far as his medicine goes, I think I’ll talk to his old psychiatrist first. We also need to make an appointment with hopefully his new psychiatrist. Like I said, more steps taken. That’s a good thing.

Sincerely-

Autism Librarian